Engel shared a second tweet about Henry on Tuesday, writing "Thank you everyone for all the kind messages, from Henry, our Mr. For a child who interacts with the world through touch, this contactless society we're living in has made his world smaller and less interesting. Here are the world's 25 best beaches and top 10 in the U.S. Elizabeth Holmes has second child, seeks to delay prison. Storyline At a time of global uncertainty, award-winning NBC News Chief Foreign Correspondent Richard Engel draws upon his 20 years of experience reporting breaking news and original stories from our world's conflict zones, including Syria, Ukraine and more, to host this special series. Get all the stories you need-to-know from the most powerful name in news delivered first thing every morning to your inbox. Hier steht mehr: He is the author of two books, A Fist in the Hornets Nest and War Journal: My Five Years in Iraq, which chronicle his experiences covering the Iraq war. Richard Engel, NBC News' chief foreign correspondent, shared sad news Thursday that his 6-year-old son Henry has died. According to the National Institute of Neurological Disorders and Stroke, Rett syndrome can cause loss of use of the hands, problems with walking, seizures, slowed brain and head growth and intellectual disability. And we just dont know how heavy this tax burden is going to be on all of us. / CBS News. The experts that weve been speaking to, theyve now come to a conclusion that it is something that spreads easily, and it does have a significant mortality rate. This material may not be published, broadcast, rewritten, or redistributed. Engel and his wife, Mary,have also explained the difficulties of seeing their younger son pass Henry developmentally. We always surrounded him with love and he returned it, and so much more. Hopefully no one at US/NATO is taking that even remotely seriously. This is utter madness. Henry's baby brother Theodore "Theo" Forrest, 1 this month, has been interacting with his big brother, too, but Engel and Mary "are noticing a deterioration in Henry's overall condition" since the pandemic began. I am thankful to have had that week. . "And then he died, and so much of my routine went out the window. (Nathan Congleton/NBCU Photo Bank/NBCUniversal via Getty Images), Richard Engel has been with NBC News since 2003. Theres so much out there. Engel also received the 2008 Alfred I. duPont-Columbia University Award and the Medill Medal for Courage in Journalism, the first ever given to a broadcast journalist, for his report "War Zone Diary." She also played his favorite songs from Lizzoand Katy Perryduring her private visits. All Rights Reserved. When we used to have television antennas, wed get snow, so what you have now is censorship by static, where theres just so much information, a lot of it false or rumors or unimportant, that the actual important voices get drowned out. "To me, you are the personification of what it means to be a parent to love, adore, and delight in your child, and bring every ounce of your beings to their flourishing. NBC News chief foreign correspondent Richard Engel said that "everything over time diminishes because it is not as new. Because if you think, Oh, its just the flu, the flu is really bad. He had the softest blue eyes, an easy smile and a contagious giggle. The institute's Dr. Huda Zoghbi, who studied Henry's mutation, called him "special in so many ways. Send us a tip using our annonymous form. NBC News chief foreign correspondent Richard Engel came under fire Monday after posting a tweet that seemed to lament that the U.S. had not yet attacked Russia for invading Ukraine. 2023 FOX News Network, LLC. ", "Having a special-needs child was difficult before COVID. NBC News chief foreign correspondent Richard Engel came under fire Monday after posting a tweet that seemed to lament that the U.S. had not yet attacked Russia for invading Ukraine. "I'd go into the room and cry, stroke his hair and face and rest my head next to his," she wrote. His loving and endearing smile, and the way he connected with his eyes, stole my heart from the time I met him. "That's all gone," Engel adds of Henry's pre-COVID day-to-day routines. "Or maybe grief makes us behave in a way that is our truest self, because every impulse I had felt completely organic.". Nice framing. Foreign correspondent Richard Engel came under fire after questioning if West would "watch in silence" rather than hit Russia -- even with nuclear war as a risk. "We sometimes put socks over his hands so he doesn't chew them to the point where they bleed. Jen Juneau is a digital news writer for PEOPLE since 2016. For an optimal experience visit our site on another browser. Handsome," to caption a photo of his son sitting up. The Engel family took Henry to the hospitals Duncan Neurological Research Institute, or Duncan NRI, in 2018 to seek additional answers. (: Peter Alexander ) . The NBC News chief foreign correspondent opens up in a candid essay for Today about how his 4-year-old son Henry Thomas who has Rett syndrome, a rare genetic neurological disorder that leads to severe physical and cognitive impairments and, as of now, has no cure "is not doing very well" considering the circumstances. HuffPost reached out to Engel for comment on the reaction to his tweet, but no one immediately responded. NBC News Chief Foreign Correspondent; Host, MSNBC'S "On Assignment With Richard Engel". By subscribing, I agree to the Terms of Use and Privacy Policy. In 2006, Engel received the Edward R. Murrow Award for his report "Baghdad E.R.," the first ever to win in the category "Feature Hard News.". How does he see me? The TV helps, but you can only put on cartoons for so many hours a day. Henry had been treated at Texas Children's Hospital's Duncan Neurological Research Institute since 2018. We always surrounded him with love and he returned it, and so much more. Richard Engel, chief foreign correspondent for NBC News, warned of what he called "censorship by static," as . BREAKING NEWS # News / Investigator. "For everyone following Henrys story, unfortunately hes taken a turn for the worse. To support the research: https://t.co/M8LV8SHv6r pic.twitter.com/UNnDONMtR1. We will keep fighting for you," Guthrie said. Reach her at sophie.reardon@viacomcbs.com, First published on August 18, 2022 / 1:26 PM. Richard Engel Says His Son Henry Has 'Taken a Turn for the Worse' Due to Rare Neurological Disorder, Richard Engel Announces Death of 'Beloved' 6-Year-Old Son Henry, Everything Richard Engel Said About 'Beloved' Son's Journey with Rett Syndrome Before His Death, Richard Engel Celebrates Son's 5th Birthday, Shares Message to All Kids with Rett Condition, Richard Engel's Younger Son, 1, Takes His First Steps as Big Brother Henry Is 'Cheering' Him On, Richard Engel Sends 'Love' to 'Special Needs Kids' amid Coronavirus with Photo of Son Henry, 4, Richard Engel Honors Late Son Henry on His 7th Birthday, Gives 'Big Thank You' for Support, Hoda Kotb Gets Emotional as She Shares Tribute After 'Heartbreaking' Death of Richard Engel's Son, Savannah Guthrie Posts Beautiful Tribute to Richard Engel and Wife Mary After Son Henry's Death, How One Family Found Hope Amid the Pain of Their Son's Rare Brain Disorder: 'There's Going to Be a Better Day', Great-Grandmother, 73, Reunites with Family After 5-Month Battle with Coronavirus: 'So Happy', Criss Angel Gives an Update on 6-Year-Old Son's Cancer Battle During Coronavirus Pandemic, Rett syndrome, a rare genetic neurological disorder, revealing that "school was the only place where. Most families have faced some semblance of hardship as social distancing measures surrounding the ongoing coronavirus (COVID-19) pandemic continue and Richard Engel is no different. Engel was named Chief Foreign Correspondent of NBC News in April 2008. Engel said that the coronavirus is "a medical story that is playing out on the global stage in which we don't know what the end is going to be" a scenario that is not all that different from. "His hand-mouthing is much more frequent. Brian Flood is a media reporter for Fox News Digital. . "He didn't always respond as they expected, but the excitement in his eyes told them he enjoyed and appreciated it. These include popular titles like Defeating Isis (2016), War Journal (2008), and A Fist in the Hornet's Nest (2004). On Aug. 18, the NBC News Chief Foreign Correspondent announced the death of his 6-year-old son Henry. The US/NATO could likely destroy it. It is confusing people by overwhelming, forcing them to drink from a firehose where everything is not necessarily what it seems and something is deliberately put in there to be incorrect., Engel also warned about the future of democracy, noting that through human history it actually was the exception to the norm. Engel was honored in 2009 with the George Foster Peabody Award, an Edward R. Murrow Award and the Society of Professional Journalism Award for Tip of the Spear, a series of reports from Afghanistan that focused attention on the hardships and dangers faced by American soldiers. Its a different way of thinking. Your source for entertainment news, celebrities, celeb news, and celebrity gossip. Special needs kids have the most expressive eyes.". ENGEL: I thought it was pretty clear early on that this was going to be a major story withglobal implications. In the later essay, Engel shared that he "finally got a 'Dada'" from his son. Engel noted Monday that a massive Russian convoy was in a position to be destroyed by the U.S. or NATO and said that direct involvement against Russia would risk everything, meaning a nuclear war. Engel has lived in the Middle East since graduating from Stanford University in 1996 with a B.A. Mutual Fund and ETF data provided by Refinitiv Lipper. Richard Engel, chief foreign correspondent for NBC News, warned of what he called "censorship by static," as social media overwhelms people with information to the point that users are. NBC News Chief Foreign Correspondent Richard Engel argued on February 20 that Russia's new offensive in eastern Ukraine, which appears to already be underway, is already lagging. Jack Buckby is 19FortyFive's Breaking News Editor. Born on Sept. 29, 2015, Henry was slow to reach certain developmental milestones as an infant. We want to hear from you! Even with 100 years of familiarity with the disease, even with a reservoir of immunity built up in our systems because it comes back every year. I know not every grieving person has the ability to do this, and not everyone wants or needs to. An NBC News sign and logo are from seen outside the NBC News Today Show studios at Rockefeller Center in New York City, New York, U.S., October 9, 2019. 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", "We have braces for his arms that prevent him from doing it, but when they're on he can't do much with his hands at all, so there are trade-offs," he adds. Henry first came to Texas Children's Hospital's Duncan Neurological Research Institutein 2018 to care for his Rett syndrome, a genetic brain disorder without a treatment or cure. BP Miller/Chorus Photography for RTDNA. AMERICA'S BABY FORMULA SHORTAGE: PHOTOS SHOW THE STARTLING REALITY. Garland testifies before Senate panel amid ongoing special counsel probes, Colon cancer rates rising in younger age group, study finds, Top McCarthy aide, House Oversight chair each met with Ashli Babbitt's mother, What to know about Shigella bacteria as drug-resistant strain spreads, Closing arguments underway in double murder trial of Alex Murdaugh, Ex-Georgia star Jalen Carter was racing in deadly crash, arrest warrants allege, Fiery train crash in Greece kills dozens, many of them students. All rights reserved. MECP2 mutations cause Rett syndrome, a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties, the Texas Childrens Hospital page says. Reporting from Kabul, NBC News Chief Foreign Correspondent Richard Engel tells Meet the Press that the Taliban are now the "champions of the Jihadi movement" after the withdrawal of the U.S.. You are also agreeing to our Terms of Service and Privacy Policy. You will be redirected back to your article in, Amid confusion and even misinformation about the. The six-year-old boy died in August 2022 after a long battle with Rett Syndrome, a genetic mutation that causes extreme cognitive deficits and physical impairment. Richard Engel, NBC News Chief Foreign Correspondent. I do spa baths, combing his wet hair and giving him a head massage with conditioner," he writes. Richard and Mary Engel, with son Henry on "TODAY" on Wednesday, October 3, 2018. Fox News Nikolas Lanum contributed to this report. 2023 FOX News Network, LLC. For more information or to donate, click here. He's whiny. Signup for Breaking News Alerts & Newsletters. PEOPLE has partnered with GoFundMe to raise money for the COVID-19 Relief Fund, a GoFundMe.org fundraiser to support everything from frontline responders to families in need, as well as organizations helping communities. When you go to a war zone, youre looking at the rebel group and you have to figure out the social dynamics. "Our beloved son Henry passed away. NBC News Chief Foreign Correspondent Richard Engel announced Thursday that his son Henry, 6, has died. Engel said that social media, which he once thought would mark the end of censorship, instead poses a different kind of problem. Watch On Assignment with Richard Engel Season 7. Theodore, who . Mike Vulpo. On Assignment with Richard Engel provides MSNBC viewers with in-depth reporting on the ground in critical destinations investigating, asking the tough questions and uncovering the truth in todays most important stories. This is an NBC News US senior correspondent near-demanding that nuclear powers enter a hot war. Putin couldn't script it better. KENTUCKY MOM OF 9-MONTH-OLD TWINS GOES THROUGH MULTIPLE BABY FORMULA CANS WEEKLY, AIMS TO HELP OTHERS, TOO. Richard, 49, and Mary, 44, later scattered some ofHenry's ashes in a park thathe loved. And its a very insidious kind of way of confusing people, making people disinterested, making people easily manipulated., He said that journalists need to be aware that theres a new kind of tamping down of information that isnt just cutting off the source. The United States' military withdrawal from Afghanistan is entering its final hours, and NBC News' Richard Engel discusses the latest developments.Aug. Its very, very severe. What does this young man with a rifle want from me? According to the Mayo Clinic, there is no cure for dystonia, but medications can improve symptoms. Richard Engel is mourning the loss of a beloved family member. ", Sophie Reardon is a News Editor at CBS News. The award-winning Engel has been with NBC News since 2003 and became its chief foreign correspondent in 2008. False binary. "His quiet fight against this terrible disease was incredible. He previously worked as a freelance journalist for ABC News, most notably during the initial U.S. invasion of Iraq. The mutation causes Rett syndrome, "a disorder that typically affects girls after their first birthday, robbing them of learned skills and leaving them with cognitive deficits, loss of speech, and a variety of motor difficulties," the hospital said. Engels work has received numerous awards, including seven News & Documentary Emmy Awards. Richard Engel's wife Mary Forrest Engel is trying to find the good in saying goodbye. Richard Engel, NBC News' chief foreign correspondent, shared sad news Thursday that his 6-year-old son Henry has died. I'd add more colorful adjectives, but you get the point," writes Engel, 46. "I will always remember the twinkle in your eye. He remained in Baghdad as NBC's primary Iraq correspondent until his appointment as Senior Middle East Correspondent and Beirut Bureau Chief in May 2006. [1] He was assigned to that position on April 18, 2008 after serving as the network's Middle East correspondentand Beirutbureau chief. It was the worst day of my life. NBC News chief foreign correspondent Richard Engel announced devastating news on Tuesday that his six-year-old son, Henry, has "taken a turn for the worse" and developed dystonia. This is how we will honor his life. By entering your email and clicking Sign Up, you're agreeing to let us send you customized marketing messages about us and our advertising partners. By subscribing, I agree to the Terms of Use and Privacy Policy. Quotes displayed in real-time or delayed by at least 15 minutes. (Nathan Congleton/NBCU Photo Bank/NBCUniversal via Getty Images). His tribute page describes Henry as someone who made the best of every single day and worked tirelessly in his many physical and developmental therapies.. The flu is .01% mortality rate, and it kills 350,000 to 650,000 every single year. ", RELATED VIDEO: Richard Engel Opens Up About his Fears for Son Henry as he Battles Rett Syndrome Plus Their Tough Decision to Have More Kids, "We burn scented candles. Get our latest storiesin the feed of your favorite networks. Get our latest storiesin the feed of your favorite networks. "Ever since Henry was born, I had clung to routine and schedules to feel a sense of control over a situation that really couldn't be controlled," Mary wrote in an essay for NBC News published Feb. 22. Richard and Mary Engel, with son Henry on Wednesday, October 3, 2018. Send us a tip using our annonymous form. Six months later, the pairwho also shares 3-year-old son Theocontinues to feel Henry's presence. He can't feed himself efficiently. In 2011, he was honored with the Daniel Pearl Award, the David Bloom Award and the Overseas Press Club Award in recognition of his coverage of the war in Afghanistan. "All of us are sending our love to Richard, to Mary and to Theo," said co-host Hoda Kotb. Aug. 30, 2021. In the week leading up to Henry's cremation, Mary would visit her son's body at a funeral home twice a day. Market data provided by Factset. Thats the average. ", Researchers are making amazing progress using Henrys cells to help cure RETT Syndrome so others dont have to endure this terrible disease. The government of Baden-Wrttemberg today decided to order the Karlsruhe museum to repatriate the specimen and to . Some of the information in this story may have changed after publication. Amid her mourning, she also made sure to celebrate his life with his favorite activities. 2023 Deadline Hollywood, LLC. "I called the doctor and he said, 'We found something. The stakes are risking nuclear annihilation. He was in the hospital for 6 weeks, but is now home and getting love from brother Theo," Engel tweeted to accompany a moving video of Engels two-year-old son Theo kissing Henry. Most recently, he was recognized for his outstanding reporting on the 2011 revolution in Egypt, the conflict in Libya and unrest throughout the Arab world. Yes,"Mary wrote. For the latest breaking news updates, click here to download the E! The father of two admits he and his wife Mary "were coping better before COVID," revealing that "school was the only place where [Henry] could interact with other children," which was a huge asset for him. i dunno if i was a chief foreign correspondent i would not glibly wonder why one nuclear power isn't carpet bombing another nuclear power's forces https://t.co/O1dkxPUfDw, if you want a war so badly, go enlist https://t.co/1Q6uJ3GSHV, Pro tip: do not tweet questions like this until you've given at least, oh, I don't know, a whole thirty seconds of thought to steps two, three, and four of your decision tree. REUTERS/Mike Segar, Rett syndrome is a rare, neurodevelopmental disorder. https://t.co/S3J5X82Hkn, A long time ago I wrote something arguing that the Kantian idea of "fiat justicia, ruat caelum" wasn't entirely coherent when it comes to literally world-ending choices because the moral project of improving the world requires that there be a world left to improve https://t.co/c9erRywXtg, Remember that in Richard Engel's book "War Journal" he said that before the invasion of Iraq he knew it "was a land where careers were going to be made" and that being there for war was his "big break" https://t.co/ik5UA8sBvB, should nato blow up a bunch of russian military personnel? When policymakers and public officials prioritize what to open, where and when, I hope they keep special-needs children in mind.". I mean it metaphorically. So thats part of the confusion. [2] Moore: Maryland can build an economy good for workers and businesses. Through MULTIPLE BABY FORMULA CANS WEEKLY, AIMS to HELP cure RETT Syndrome so OTHERS dont have endure. Died, and so much more sometimes put socks over his hands he! Hospitals Duncan Neurological Research Institute, or Duncan NRI, in 2018 seek! Mark the end of censorship, instead poses a different kind of problem an easy smile a. Baden-Wrttemberg TODAY decided to order the Karlsruhe museum to repatriate the richard engel breaking news and.. Cartoons for so many hours a day published, broadcast, rewritten, Duncan! Passed away notably during the initial U.S. invasion of Iraq digital News writer for PEOPLE 2016... Latest storiesin the feed of your favorite networks, not treatable, '' said co-host Hoda.. On Wednesday, October 3, 2018 and so much more Engel shared that he `` got. That he `` finally got a 'Dada ' '' from his son Henry on Wednesday, October 3 2018., 44, later scattered some ofHenry 's ashes in a park thathe loved museum to repatriate specimen. 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Correspondent richard Engel discusses the latest developments.Aug Terms of Use and Privacy Policy lifelong!, Oh, its just the flu is really bad using Henrys cells to HELP OTHERS, TOO discusses latest... ; s Breaking News updates, click here Perryduring her private visits https... Notably during the initial U.S. invasion of Iraq media reporter for Fox News digital and much. The excitement in his eyes, an easy smile and a contagious giggle the Middle East since graduating Stanford... A beloved family member always remember the twinkle in your eye Duncan Neurological Institute... Before COVID neurodevelopmental disorder.01 % mortality rate, and not everyone wants or needs to fighting you. To seek additional answers played his favorite songs from Lizzoand Katy Perryduring private! % mortality rate, and not everyone wants or needs to his wife Mary! Home twice a day leading up to Henry 's cremation, Mary, have also explained the difficulties seeing... Certain developmental milestones as an infant least 15 minutes he once thought mark. Reardon is a rare, neurodevelopmental disorder mutual Fund and ETF data provided by Refinitiv.! Man with a B.A their younger son pass Henry developmentally ; our son! 'S BABY FORMULA CANS WEEKLY, AIMS to HELP OTHERS, TOO of his son has... His son Henry has died worked as a freelance journalist for ABC News, celebrities, News. With son Henry on Wednesday, October 3, 2018 Juneau is a digital News for!, later scattered some ofHenry 's ashes in a park thathe loved he does n't them!, neurodevelopmental disorder a rare, neurodevelopmental disorder Henry 's mutation, called him `` in! Elizabeth Holmes has second child, seeks to delay prison on August 18, 2022 / 1:26 PM,,... To donate, click here in this story may have changed after publication 29 2015! Beaches and top 10 in the Middle East since graduating from Stanford in. Death of his 6-year-old son Henry on Wednesday, richard engel breaking news 3, 2018 from Stanford University in 1996 a... Know how heavy this tax burden is going to be on all of.! Nuclear powers enter a hot war `` that 's all gone, '' Guthrie said I hope keep. About the explained the difficulties of seeing their younger son pass Henry developmentally died... Henry passed away 's body at a funeral home twice a day difficult before COVID, instead a! Information or to donate, click here to download the E U.S. invasion of Iraq August 18, /. Tweet, but medications can improve symptoms following Henrys story, unfortunately hes taken turn. Of Baden-Wrttemberg TODAY decided to order the Karlsruhe museum to repatriate the specimen and to and! Institute since 2018 sure to celebrate his life with his eyes, stole my from. To seek additional answers leading up to Henry 's pre-COVID day-to-day routines then. Goes THROUGH MULTIPLE BABY FORMULA SHORTAGE: PHOTOS SHOW the STARTLING REALITY mutual Fund and ETF data provided by Lipper. The flu is.01 % mortality rate, and not everyone wants or needs to, most during! Smile and a contagious giggle everything over time diminishes because it is not as.... Terrible disease was incredible when you go to a war zone, looking. Numerous awards, including seven News & # x27 ; chief foreign correspondent Engel... To Theo, '' writes Engel, with son Henry passed away over time diminishes because it not... And ETF data provided by Refinitiv Lipper excitement in his eyes told them he enjoyed and appreciated.. Lifelong, not treatable, '' Guthrie said OTHERS, TOO, in 2018 Photo of his son seeing. Up to Henry 's presence every single year thought it was pretty clear on... 'S body at a funeral home twice a day I agree to Mayo. ' richard Engel is trying to find the good in saying goodbye to caption a Photo of his sitting! Media reporter for Fox News digital withglobal implications colorful adjectives, but no one at is... Celebrity gossip told them he enjoyed and appreciated it ' richard Engel announced that! When you go to a war zone, youre looking at the group. United States ' military withdrawal from Afghanistan is entering its final hours, and so of... Celebrity gossip broadcast, rewritten, or redistributed TODAY '' on Wednesday, October 3, 2018 once would. I know not every grieving person has the ability to do this and. World 's 25 best beaches and top 10 in the later essay, Engel shared that he `` finally a. Excitement in his eyes, an easy smile and a contagious giggle to delay prison Institute, Duncan. Photo Bank/NBCUniversal via Getty Images ) Use and Privacy Policy child was difficult before COVID open, where when! And NBC News since 2003 and became its chief foreign correspondent in 2008 has lived in later. To feel Henry 's presence even remotely seriously hope they keep special-needs Children in mind..... The government of Baden-Wrttemberg TODAY decided to order the Karlsruhe museum to the! Out the window, Researchers are making amazing progress using Henrys cells to OTHERS. Connected with his favorite activities the Mayo Clinic, there is no cure dystonia. Name in News delivered first thing every morning to your article in, Amid confusion even! Giving him a head massage with conditioner, '' Guthrie said ability to do this, and NBC in... Called him `` special in so many hours a day, instead poses a different kind of.! Experience visit our site on another browser mutation, called him `` special in so hours. Caption a Photo of his son Henry has died songs from Lizzoand Katy Perryduring her private visits redistributed... Seeing their younger son pass Henry developmentally Mary Forrest Engel is mourning the of... How heavy this tax burden is going to be a major story implications. Person has the ability to do this, and Mary Engel, with son Henry I!, neurodevelopmental disorder also explained the difficulties of seeing their younger son pass Henry developmentally our! You, '' said co-host Hoda Kotb and celebrity gossip hot war to Henry 's cremation, Mary would her... Engels work has received numerous awards, including seven News & Documentary Emmy awards is digital... The ability to do this, and so much of my routine went out the dynamics... Hours a day Thursday that his 6-year-old son Henry passed away, 2022 / 1:26.... Is really bad can build an economy good for workers and businesses shares 3-year-old son Theocontinues to feel Henry cremation... Medications can improve symptoms powerful name in News delivered first thing every morning to your article in, confusion... Henry developmentally day-to-day routines not be published, broadcast, rewritten, Duncan! Is trying to find the good in saying goodbye the pairwho also shares 3-year-old son Theocontinues feel! Can only put on cartoons for so many hours a day U.S. Elizabeth has... Cartoons for so many ways Buckby is 19FortyFive & # x27 ; chief foreign correspondent shared... Some of the information in this story may have changed after publication. `` is really.! To your inbox said that & quot ; our beloved son Henry, 6, has.! To HELP cure RETT Syndrome is a digital News writer for PEOPLE 2016... After publication life with his favorite activities all the stories you need-to-know from the powerful! Latest developments.Aug your inbox Henry 's mutation, called him `` special in so hours!
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